Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.

Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...

An advisory panel of the U.S. Food & Drug Administration (FDA) said today it did not have sufficient clinical trial data to recommend approval of liprotamase, a non-porcine pancreatic enzyme therapy ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

I would have argued the newborn screening result until my face turned blue. There was no way my baby had cystic fibrosis. My prenatal screening was negative, and I believed it showed that my son was ...

On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...

Dear Speaker Johnson, Chair Aderholt, Leader Jeffries and Ranking Member DeLauro, We, the undersigned organizations, write to express our deep concern for our nation’s biomedical research institutions ...

Today 40 non-profit, non-partisan organizations issued a statement in advance of the House Energy and Commerce and Ways and Means Committee markups asking them to stop assaults on healthcare that will ...

Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community. I never ...

Dear Chair Cavanagh and Members of the Committee on Finance, Insurance, and Consumer Protection: On behalf of the people living with cystic fibrosis in Michigan, the Cystic Fibrosis Foundation writes ...

Dear Chair Nosse and Members of the Committee on Behavioral Health and Health Care: On behalf of the nearly 470 people living with cystic fibrosis in Oregon, the Cystic Fibrosis Foundation writes to ...

Dear Chairman Feeney, Chairman Murphy, and Members of the Joint Committee on Financial Services: On behalf of the more than 830 people living with cystic fibrosis in Massachusetts, we write to express ...